{"id":67909,"date":"2024-03-21T21:14:57","date_gmt":"2024-03-21T20:14:57","guid":{"rendered":"https:\/\/euronews.al\/en\/?p=67909"},"modified":"2024-03-21T21:14:57","modified_gmt":"2024-03-21T20:14:57","slug":"down-syndrome-day-parents-waiver-of-custodial-payment-unacceptable","status":"publish","type":"post","link":"https:\/\/euronews.al\/en\/down-syndrome-day-parents-waiver-of-custodial-payment-unacceptable\/","title":{"rendered":"Down Syndrome Day\/ Parents: Waiver of custodial payment unacceptable"},"content":{"rendered":"<p>Children, parents and civil society organizations demanded respect for the rights and equal opportunities for those affected by Dawn Syndrome, in the sensitization activity that took place in Elbasan, within the framework of the International Day of Down Syndrome.<\/p>\n<p>&#8220;This year&#8217;s theme is &#8216;You end stereotypes&#8217; because it is known that we still need the community to be aware of Down Syndrome, and we are right here and I am very happy to see today children who are already 10-11 years old and apart from going to public schools, in the future they will make their contribution to society,&#8221; said Lindita Senja.<\/p>\n<p>Neki \u00c7ela, grandfather of a child with Down Syndrome, raises the concern of removing the guardianship payment, according to them, an abuse for these children who absolutely need a companion.<\/p>\n<p>&#8220;What can I describe how difficult it is, when you already know. He wants a person with him at every step, they have taken away the companion that holds him, this happens because of the country we live in.\u201d<\/p>\n<p>Even for Xhemile Ko\u00e7i, life with her 15-year-old daughter affected by this syndrome has not been easy at all.<\/p>\n<p>&#8220;My life has become more beautiful with this child, I want to say, but it has been difficult because we did not recognize this syndrome. My sufferings were very great until I approached with the syndrome, because initially she was aggressive and did not want children around. I wish every mother who has this child with Down&#8217;s syndrome to be the happiest in the world, because at first it will be a little difficult, but it will be a joy all her life&#8221;.<\/p>\n<p>&#8220;We have difficulties due to the economic situation, because she is a child who needs all the conditions, and with the money we get we can not get everything she needs, because she takes the medicine month by month.&#8221;<\/p>\n<p>Based on the categorization of mental retardation, the guardianship payment for down syndrome is waived. They benefit only the defined categories with severe mental retardation.<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Children, parents and civil society organizations demanded respect for the rights and equal opportunities for those affected by Dawn Syndrome, in the sensitization activity that took place in Elbasan, within the framework of the International Day of Down Syndrome. &#8220;This year&#8217;s theme is &#8216;You end stereotypes&#8217; because it is known that we still need the [&hellip;]<\/p>\n","protected":false},"author":23,"featured_media":67910,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[153,1803],"tags":[1701,6389,243,151,5009,3951],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.7 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Down Syndrome Day\/ Parents: Waiver of custodial payment unacceptable - 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